I just assumed doctors know all about diabetes stuff…

They do! They know how the hormones work, but not how the food relates to the hormones - they really don’t get training on this.

I felt greasy and horrible and disgusting and heavy

This sounds like a gallbladder wake up issue - after a long time on low fat the gallbladder has some starting pains.

my LDL cholesterol went even worse (6.3–7.8).

LDL, and cholesterol is not a disease - if your doing proper LCHF and in ketosis - very lean people do see a elevation in LDL, but since you indicated some adiposity this probably wasn’t your scenario.

I tried fixing it by eating mostly protein and low fat instead, but considering I can’t eat much volume per day, that just ended up with me eating almost nothing and things went real bad from there. I couldn’t get out of bed for days at a time levels of fatigue. So I slowly added back in wholemeal carbs and some fat, and at least now I know what types of carbs cause spikes.

Low fat isn’t sustainable on keto, if you join one of the medically supervised nutrition programs they won’t let you stay low fat for the reasons you describe. The probably will have you slowly increase fat so your gallbaladder can keep up, or add some bile supplements while you adjust.

The reason I can’t eat much is I have erosion in my esophagus, stomach, and intestines from GERD acid reflux (confirmed via endoscopy). I’ve been on strong acid suppressants for a while but it seems like the “damage is done” so to speak from decades of acid splashing all over the place, and it’s not healing. At least I don’t wake up with a melting throat anymore so I’ll take that.

Suppressing stomach acidity does match up with your fat intake symptoms. The literature does indicate that keto (but especially zero carb) helps with GERD, but this must be done under medical supervision as medications will need to be adjusted during the onboard phase. I’d recommend either revero (zero carb) or virta health (keto) as programs to work with their physicians in a Telehealth setting.

I’m on statins recently to try and reduce my LDL.

Statins increase the risk of t2d, so that lines up with the prediabetes.

this is only a small part of my medical problems. Before we get into POTS, CFS, hEDS, MCAS, chronic migraines, arthritis, hormone problems, heart problems, neuropathy… I always forget most of my issues as well I can’t keep track of them all. I take more than 10 pills per day to manage all that.

I’m not familiar with all of those - but migraines, arthritis, hormonal issues, heart, and neuropathy all have strong foundations in the underlying diet and hyperinsulinemia.

I just accepted I’m going to die sometime soon based on this trajectory.

I don’t think thats necessary. Work with a low carb doctor to improve your metabolic health. There are LOTS of people with testimonials about how their life turned around by focusing on small metabolic changes. I’m happy to share those if you would find them motivating. Where ever you are - you can improve - just focus on one step at a time.

I’ve been trying to increase my walking per day because I heard walking is a great way to reduce diabetes and heart attack risk. I’m up to 15 minutes walk per day and some sneaky resistance training, which knocks me out for the rest of the day, but it makes me feel like I’m doing something at least.

That is great! every bit of movement helps.

Basically my body is failing in a million different ways at once at this point. If I only had one problem it would be easy to fix, but everything interacts and compounds the issue.

My suspicion is that everything is rooted in metabolic problems just manifest in a hundred different ways.

Basically my body is failing in a million different ways at once at this point. If I only had one problem it would be easy to fix, but everything interacts and compounds the issue. Thanks for listening and trying to help by the way, you’re a kind person

Yeah! I’m happy to help if I can. I really think you should reach out to virta, this is exactly their focus. Please reach out to either revero (zero carb) or virta health (keto) to see if they can help with your health management.

I actually did use a CGM and the most concerning thing noted was I was going into high 2’s and low 3’s blood sugar. Normal range is 4–7 so I was hypoglycemic for a big part of every day.

That is a common sign of insulin resistance, basically the human insulin is more attuned to the insulin curves (gentle but long lasting) for protein, but we have a diet high in carbs which spike blood glucose - so to get enough insulin to bring down the glucose in a resistant person will actually cause hypoglycemic events!

All the doctors I’ve seen have mostly just been confused and not really sure how to help me. My disability makes it impossible to exercise enough per day.

The vast majority of doctors receive little to no nutritional training (even endocrinologists) outside of tube feeding in a hospital setting - so nutritional help isn’t what they are strong at.

did keto for a while but it wasn’t sustainable for me long term.

I’m curious what happened, if your open to going into details.

Overall a shitty situation, not much can be done to help me it seems.

You might want to reach out to medically supervised low carb programs, they may actually be equipped to help you with your medical history. Virta health is the one I have personal experience with, and they are great.

If your worried about pre-diabetes and other metabolic symptoms (hyper tension, fatty liver, visceral obesity excess adiposity, snoring, etc) ; you might want to talk to your doctor about going low carb. Lots of the food you listed will spike your blood glucose (especially the adult formula), which will spike your insulin, which is the foremost cause of pre-diabetes and other metabolic problems. While whole grain/complex carbs are less bad then refined carbs - they are not good and will still spike your blood glucose. You can see this in real time if you put a CGM (continuous glucose monitor) on for two weeks